Shunts are wonderful in that they are able to keep many patients alive — but they are unreliable, ticking time bombs of uncertainty for those depending upon them.
#hydrocephalusawarenessmonth
#NOMOREBS #HAM2019

A funny video about shunts used to treat hydrocephalus.

#NOMOREBS #HAM2019 #hydrocephalusawarenessmonth

https://m.facebook.com/story.php?story_fbid=10157193962581068&id=592791067

Fifty years ago childhood hydrocephalus had almost a 100% mortality rate. While the mortality rate is 5% today the cure rate is still at zero percent. I just celebrated my 49th birthday. #NOMOREBS #HAM2019 #hydrocephalusawarenessmonth

Who do you call to fix a clog in your sink? A plumber.

Who do you call to fix a plumbing problem in your brain? A neurosurgeon.🤣

#hydrocephalusawarenessmonth

#NOMOREBS

Hydrocephalus is a life altering, life threatening condition, caused by an abnormal accumulation of cerebrospinal fluid, resulting in pressure on the brain.

#HAM2019 #NOMOREBS

One out of every 770 babies born in the United States develops hydrocephalus.

#hydrocephalusawarenessmonth

#nomorebs

Today I’m joining @HydroAssoc in raising awareness about #hydrocephalus. Let’s find a cure! #HAM2019 #NOMOREBS.

Third time’s a charm, right? I had one neurologist for years whose mantra appeared to be ‘every headache is a migraine.’ Different hospital, new neurologist. During my ninety+ day headache gave me the same type of medication and said “come see me if it doesn’t improve we’ll put you back on a medication you’ve previously been on.” NOOOO!!!

Some headaches are shunt-related and have more to do with fluid dynamics than blood vessel dilation. Finally, maybe, a neurologist who gets it.

@FelicityG

The Chicago walk to raise money to find a cure for hydrocephalus is August 18. My husband and I will be walking with my fellow hydro warriors.
If every child diagnosed with autism endured a mandated brain surgery meant to treat their condition, would the world sit up and take notice?
The most common pediatric neurosurgery is the placement of a shunt to treat, not cure, hydrocephalus. We will endure brain surgeries to stay alive because it’s the only choice we have.