A shout out to all of us who deal with #hydrocephalus. Although hydrocephalus isn’t a disease, it’s still rare. Thank you #Neurosurgery for keeping us alive. #RareDiseaseDay #RareDiseaseDay2022
Two days before Thanksgiving I had a bout of dizziness. The world wasn’t spinning, but my usually poor balance was off kilter. I dismissed it as a one-day ailment.
One week later I’m visiting my sister in Seattle I awake the second morning and the room is spinning counter-clockwise. I’ve not drunk any alcohol to cause this. Definitely a neurological problem.😵💫 The dizziness also returns with nausea and stays full-on for about five days.
Returning home I convince my neurosurgeon’s nurse that something isn’t right. The last time I felt like this I was on a slow boat to shunt failure. After a shunt series and a CT scan they can find nothing wrong with the function of hardware in my brain.🧠
Three weeks into this adventure I now feel like I’m being blown over by a strong wind. I call make an appointment with my neurologist, but can’t get an appointment until June. 😐
Fortunately, the symptoms subside before Christmas and I’m confident enough to leave the proximity of my medical team to visit my out-of-town in-laws. The visit was medically uneventful, and my largest worry was my kitten hiding permanently under their couch. 🛋 It did add some humor to an otherwise stressful month.
- I need see my neurosurgeon only yearly.
- I’ve been given the all-clear until 2022.
- I don’t get seizures (any more)
- My current shunt is five years old.
I have been too. Although I’ve now been vaccinated for Covid-19,I’ve temporarily lost my sense of adventure. In my mind I’m planning two cruises, in reality I sit at home with the Pandemic Cat.
Meet Leopold, the six-month-old Maine Coon Kitten. Currently weighs 10+ pounds, expected to be up to three times that weight when full grown. I must keep up the weight training.🏋️♀️
(I loved this post I found.)
I recently tweeted a picture that showed the process I am using to outline my new novel. There were a number of replies which generally fell into two categories: That is mental, you are mental #PantsersRuleTheWorld Interesting, I might give it a try. Of course, we all love to write and the more time you […]Outlining Your Novel – How to plan your story.
With a worldwide pandemic and racial riots it’s been a good time to stay home. I’ve been out of the house only a handful of time since mid march. I’ve cancelled a trip to Hawaii, a trip to Houston and a trip to England. Another casualty was a cruise to celebrate my fiftieth birthday. Many have spoken about cancelling 2020, does that mean I can cancel my fiftieth birthday? In 2021 can I claim to still be forty nine? One good thing that’s come out if staying at home, I’m exercising more. It really does help mitigate anxiety by keeping to a regular schedule.
I got a Keurig coffee-maker for Christmas and I love it. However, there is a dire lacking of decaffeinated K-Cups.🤔
As someone who regularly gets headaches and migraines, do I add to those with all the delicious, but caffeinated k-cup varieties? Absolutely!
Afterwards, I must put the Keurig away for a week and return to drinking water.
A (protracted) post from a hydro-mom, Olivia is a teenager!! She’s had as many brain surgeries as I’ve had years of life. #NOMOREBS
“Olivia’s going into surgery shortly.
This will be number 50. Let that sink in a moment. We need better technology, more research, a cure. Olivia has missed most of this semester at school. We need to do better.”
Timely headache last night. Currently waiting for my flight to DC. Tuesday involved in yearly push for awareness. Face time with members of congress for migraine research. #HOH #HeadacheontheHill