The Chicago walk to raise money to find a cure for hydrocephalus is August 18. My husband and I will be walking with my fellow hydro warriors.
If every child diagnosed with autism endured a mandated brain surgery meant to treat their condition, would the world sit up and take notice?
The most common pediatric neurosurgery is the placement of a shunt to treat, not cure, hydrocephalus. We will endure brain surgeries to stay alive because it’s the only choice we have.
My headaches have been well under control since surgery in March. Yesterday I had a headache and thought ‘Where did this come from?’ Today awoke with a migraine and thought ‘What did I eat?’
A day or two ago I remembered eating an entire box of macaroni & cheese. Apparently even organic mac & cheese is on the ‘do not eat’ list.🧀
Cheese, chocolate, citrus fruits, caffeine and artificial sweeteners still banned from my eating list.
After intracranial monitoring in March, and the adjustment to my shunt, the difference has been remarkable.
I hardly have any headaches, fingers crossed it stays that way. Also my body seems to be more tolerant to migraine triggers. I haven’t had a weather migraine since the shunt adjustment, I’m no longer a walking barometer. I don’t have to instantly anticipate a migraine in two days if I forget to say “decaf” at Starbucks.
Dodged another physician appointment with refills.
Today attending Chicago Writers’ Workshop. I will write my book despite headaches, memory issues, and brain surgeries.
Home from Europe. Two physician appointments; one this week, one next. No more appointments for two months. Fingers crossed head continues to behave.🤞
I’m on my way home. I’m ready. My head hurts, my shoulder hurts, my body is weary. I should be using this time to write, but even my brain feels tired. I can’t believe it, but for a while, I’m travelled out.