In November of 2017 I participated in a survey conducted by the Hydrocephalus Association regarding my experiences as a middle-aged adult with hydrocephalus.

Fast forward eighteen months, the information I and others provided resulted in a new area of research for hydrocephalus: feelings of nausea and general malaise as an additional symptom experienced by those with hydrocephalus.

After almost two months of this headache, I think it’s starting to go away. I don’t trust this completely; it’s gone and come back before. However with the help of modern medicine perhaps I’m on the road..