Ninety One Days

Is how long this headache has lasted. It’s taken a day off here and there, but basically three months with the same headache. My eyebrows hurt, the top of my head hurts. None of my cures or remedies have helped.😡


Another Way to Become an Almost Famous Author

I’ve never been part of a museum exhibit before!! Pretty cool.😎
Illinois State Museum -Springfield.
We Are Illinoisans
February 23, to June 7, 2019.
An exhibition highlighting immigrants to Illinois from the 18th century to today through photos, objects, and life stories.

A Little Help Goes a Long Way

In November of 2017 I participated in a survey conducted by the Hydrocephalus Association regarding my experiences as a middle-aged adult with hydrocephalus.

Fast forward eighteen months, the information I and others provided resulted in a new area of research for hydrocephalus: feelings of nausea and general malaise as an additional symptom experienced by those with hydrocephalus.

A Headache That’s Lasted A Month

I’ve had a headache since December tenth. Luckily most days it’s mild. However, for weeks it can be ‘I wish I could rip my scalp of’ viscous. I thought it was an uptick in migraines, or changes in weather, until remedies for those types of headaches didn’t help this headache.

I went to see my nuerosurgeon. (I always giggle as I say this , as though everyone has their own neurosurgeon.) He didn’t like the sound of my headache and ordered an MRI. After looking at the results, he wants to see me in eight weeks.

Five years ago I was seeing him once a year. Four years ago I was seeing him twice a year. Then in 2016 I had two brain surgeries (shunt revisions) to treat my hydrocephalus. I then went to seeing him every six months. Now it’s every two months. This isn’t how technology is supposed to work!

I appears, also that I may have acquired another affliction related to my hydrocephalus. Oh joy.

I’ve rewritten the words of Huey Lewis’ song “I Want a New Drug.” My title is “I Want a New Head.”

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