Today I’m joining @HydroAssoc in raising awareness about #hydrocephalus. Let’s find a cure! #HAM2019 #NOMOREBS.

Third time’s a charm, right? I had one neurologist for years whose mantra appeared to be ‘every headache is a migraine.’ Different hospital, new neurologist. During my ninety+ day headache gave me the same type of medication and said “come see me if it doesn’t improve we’ll put you back on a medication you’ve previously been on.” NOOOO!!!

Some headaches are shunt-related and have more to do with fluid dynamics than blood vessel dilation. Finally, maybe, a neurologist who gets it.

@FelicityG

The Chicago walk to raise money to find a cure for hydrocephalus is August 18. My husband and I will be walking with my fellow hydro warriors.
If every child diagnosed with autism endured a mandated brain surgery meant to treat their condition, would the world sit up and take notice?
The most common pediatric neurosurgery is the placement of a shunt to treat, not cure, hydrocephalus. We will endure brain surgeries to stay alive because it’s the only choice we have.

My headaches have been well under control since surgery in March. Yesterday I had a headache and thought ‘Where did this come from?’ Today awoke with a migraine and thought ‘What did I eat?’

A day or two ago I remembered eating an entire box of macaroni & cheese. Apparently even organic mac & cheese is on the ‘do not eat’ list.🧀

Cheese, chocolate, citrus fruits, caffeine and artificial sweeteners still banned from my eating list.